August 6, 2012
The below diary piece is my effort to show how much work combating a progressive disease can require. It’s not the way, it’s just my way. This isn’t to brag or to make anyone feel inadequate or unproductive, though I suspect many of you will relate to certain aspects of this experience. We’ve all got to fight this thing any way we can.
9 am: Awakened by alarm, sit up in bed, drag the morning drugs out of my nightstand. Begin the day by taking one Ampyra, two Mycophenelate (the drug intended to aid with organ transplant that is supposed to help slow the progression of MS). Scooter to bathroom, empty bladder. Take first Tizanidine tablet of day.
Have breakfast of low sugar, high fiber cereal with soymilk. Fresh berries if they are available. Go back to bedroom/office, call insurance company, drug companies as required. This can suck up an hour of a typical morning. Depending on the day, I will use some of the morning for life coaching. Between 11 am and 12 pm, I head over to the gym, located conveniently down the block from my apartment. I spend 1 ½ – 2 hours using a variety of machines to maintain my strength.
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