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August 2017
A
multiple sclerosis study will collect information about patients’ movement
performance and symptoms from their smartphones, Novartis has reported.
multiple sclerosis study will collect information about patients’ movement
performance and symptoms from their smartphones, Novartis has reported.
The
study is aimed at evaluating in real time the daily challenges of people living
with MS. The results may help researchers develop new ways to measure
treatments’ effectiveness, the company said.
study is aimed at evaluating in real time the daily challenges of people living
with MS. The results may help researchers develop new ways to measure
treatments’ effectiveness, the company said.
Novartis is partnering on what it has dubbed the elevateMS study
with Sage Bionetworks. The non-profit research organization is developing new
predictors of disease to accelerate health research.
with Sage Bionetworks. The non-profit research organization is developing new
predictors of disease to accelerate health research.
A cellphone application will allow MS patients to send
information about their situation from anywhere.
information about their situation from anywhere.
The app will use sensors to gather information on patients’
movements. It will also assess functional performance tasks that participants
engage in. Patients can also fill out questionnaires with the app.
movements. It will also assess functional performance tasks that participants
engage in. Patients can also fill out questionnaires with the app.
A division of Apple called the Apple ResearchKit platform
developed the app. Those interested in participating in the study can download
it here.
developed the app. Those interested in participating in the study can download
it here.
The elevateMS app allows a smartphone user to register important
features of their disease. It includes a symptom tracker tool that allows users
to record their overall wellness. They can also get an overview of what’s been
happening to them on an activity dashboard.
features of their disease. It includes a symptom tracker tool that allows users
to record their overall wellness. They can also get an overview of what’s been
happening to them on an activity dashboard.
Patients, neurologists and disease advocates gave Apple’s app
team input that helped with the design.
team input that helped with the design.
“As physicians, we always want to know how our patients
with MS are doing on the treatments we prescribe,” Dr. Stanley Cohan,
medical director of the Providence Multiple Sclerosis Center in Portland,
Oregon, said in a press release.
with MS are doing on the treatments we prescribe,” Dr. Stanley Cohan,
medical director of the Providence Multiple Sclerosis Center in Portland,
Oregon, said in a press release.
“With the elevateMS app, study participants can frequently
document their symptoms in a personal health story,” said Cohan, one of
the scientific advisors to the study. “In turn, this data may provide
researchers with new ways to look at disease progression and treatment
effectiveness.”
document their symptoms in a personal health story,” said Cohan, one of
the scientific advisors to the study. “In turn, this data may provide
researchers with new ways to look at disease progression and treatment
effectiveness.”
The elevateMS study is open to MS patients 18 years old or older
in the United States who own a smartphone.
in the United States who own a smartphone.
Additional information about it is available at www.elevatems.org.
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