A parent’s multiple sclerosis can take heavy toll on children

Stuart SchlossmanAn MS Patients Story, Caregiver related, Multiple Sclerosis

By Petula DvorakThursday, March 24, 7:09 PM

Alice is a 19-year-old woman who blogs anonymously about changing her mother’s diapers. She lies to people about why she has no life and posts heartbreaking confessions about ignoring her mom’s screams of pain, then going back to her living-room bed to take care of her.
One minute she hates her mom and wishes her dead; the next, her heart aches for the crying, tormented, immobile shadow of a person her mother has become. Every minute of the day she despises the disease — multiple sclerosis — that has done this to both of them.
Ava Henderson is a bouncy 9-year-old from Montgomery County who asks for a trip “to the brain guy” (“Neurologist, Ava,” her mother interjects) for some answers.
As far as the Hendersons are concerned, their entire family has multiple sclerosis, a disease that causes the immune system to attack the nervous system.
“It affects everyone in the family, not just me,” said Doug Henderson, a stay-at-home dad who got his MS diagnosis 22 years ago, right after he left the Marine Corps.


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