“FACT…the MS disease community in particular, finds itself at the top of the list to become medical tourists in other countries. Why is this?”
Written by Jennifer Ziegler – a Member at
PatientsForStemCells.org Grassroots advocate for Multiple Sclerosis and Adult
Stem Cell
PatientsForStemCells.org Grassroots advocate for Multiple Sclerosis and Adult
Stem Cell
The only cell type that is
currently in use in clinical trials for MS is autlolgous bone marrow
transplants used in Dr. Burt’s study at Northwestern, http://www.youtube.com/watch?v=yi49gJkuRlQ
and MSC NP (Mesemchymal Stem Cells Neural Progenitor) used in the new study at
the Tisch Center for MS, with Dr. Cox. You may have heard about the Tisch study
recently as Meredith Viera’s husband is a participant. http://www.examiner.com/article/dr-oz-discusses-meredith-vieira-s-family-health-battle-and-stem-cell-research
currently in use in clinical trials for MS is autlolgous bone marrow
transplants used in Dr. Burt’s study at Northwestern, http://www.youtube.com/watch?v=yi49gJkuRlQ
and MSC NP (Mesemchymal Stem Cells Neural Progenitor) used in the new study at
the Tisch Center for MS, with Dr. Cox. You may have heard about the Tisch study
recently as Meredith Viera’s husband is a participant. http://www.examiner.com/article/dr-oz-discusses-meredith-vieira-s-family-health-battle-and-stem-cell-research
Other than those 2 studies that’s it! ESC never paned out even after millions
of dollars were pumped into their development, and they are also known to be
tumorigenic. iPC cells are 10 to 15 years out. We believe iPC cells do show
promise and will probable be extremely useful at some point in the future, but
“no option,” patients don’t have time to wait. What were seeing, in
the MS online communities over the past 10 years is a migration for treatment
to overseas clinics. These are the success stories we are hearing about. Thanks
to social media ALL disease communities are very well connected today. FDA
drugs have proved to be lacking, and stem cell success stories are an exciting
reality.
Those of us who have had
treatment share the good, the bad and the ugly with each other. We share
success and failure. Not everyone has the same level of recovery, that’s just
fact. We are seeing that early treatment is key. Younger stem cells prove to be
more viable. We have an uphill battle here in the US, there’s no doubt, but our
PFSC group is making waves. Our member Micheal Phelan spoke at the Workshop of
the Institute of Medicine of the National Academies: Stem Cell Therapies –
Opportunities for Assuring the Quality and Safety of Unregulated Clinical
Offerings, that was held on November 18, 2013 at the National Academy of
Science Building in Washington, DC. http://www.cellr4.org/article/592
treatment share the good, the bad and the ugly with each other. We share
success and failure. Not everyone has the same level of recovery, that’s just
fact. We are seeing that early treatment is key. Younger stem cells prove to be
more viable. We have an uphill battle here in the US, there’s no doubt, but our
PFSC group is making waves. Our member Micheal Phelan spoke at the Workshop of
the Institute of Medicine of the National Academies: Stem Cell Therapies –
Opportunities for Assuring the Quality and Safety of Unregulated Clinical
Offerings, that was held on November 18, 2013 at the National Academy of
Science Building in Washington, DC. http://www.cellr4.org/article/592
Mike did an amazing job presenting our view point. It’s well worth the time to
read his summary. Forbes also did an article featuring Mike earlier in 2012. http://www.forbes.com/sites/johnfarrell/2013/02/21/one-mans-reluctant-tour-for-adult-stem-cells/
Mike and SammyJo are our awesome public speakers and can very eloquently get
our view point across on various patient panels. SammyJo spoke on the patient
panel at the Houston Stem Cell Summit, along with Chairman Hardcastle, former
Texas House of Representatives member and PFSC member. Honestly the entire stem
cell community has never had a group of patients speek up as loudly as we are
doing. I also highly recommend that you listen to, “The History Of FDA
Control Of Your Body.” http://www.patientsforstemcells.org/home/
This is really
where it all began. I’ve gotten a crash course in adult stem cells over the past
18 months! Never in million years did I think I’d be caught up in a fight for
the right to be treated with the cells from my own body. I will leave the
country to gain access to be treated with my cells in the future, and until
this changes so will everyone else that I know.
where it all began. I’ve gotten a crash course in adult stem cells over the past
18 months! Never in million years did I think I’d be caught up in a fight for
the right to be treated with the cells from my own body. I will leave the
country to gain access to be treated with my cells in the future, and until
this changes so will everyone else that I know.
Comment here at this blog posting if you want to message Jennifer
To access this posting from the outside, click: http://wwwmsviewsandrelatednews.blogspot.com/2013/12/whats-skinny-on-being-treated-with-your.html
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