Researchers in the Physical Activity and Behavior Lab at the University of Massachusetts Amherst are currently recruiting individuals with MS for a study of MS symptoms. This is a voluntary study that is testing a new comprehensive symptom questionnaire to determine how well it is able to measure the severity, frequency, and distressfulness of MS symptoms. The study can be completed by mail or online and participants will be compensated for their time and effort. Participants in the study must have a definite diagnosis of MS and be between 20-70 years old.
Anyone interested in more information should contact Dr. Erin Snook by email [email protected] or telephone (413) 545-6007.
If participating, Please advise Erin, that you received this information from Stu’s Views & MS News – thank you
IMPROVING the Measurement of MS Symptoms
You are invited to participate in a research study conducted by Dr. Erin Snook and the Physical Activity and Behavior Lab in the Department of Kinesiology at the University of Massachusetts Amherst. The objective of this study is to test a new comprehensive MS symptom questionnaire that is able to measure the severity, frequency, and distressfulness of symptoms. We believe measuring these three symptom characteristics will help to improve our understanding of symptoms. This is the first study in a series of studies meant to develop a questionnaire that can be used by neurologists and other clinicians to better track and treat changes in MS symptoms over time. We plan on publishing the results of this study in a journal read by doctors and clinicians who treat MS and to use this new data to obtain funding for future research focusing on symptom assessment and management.
This study is quite straightforward and involves completing 8 questionnaires. These questionnaires will take approximately 1.5 – 2 hours to complete. You will return a signed copy of this consent form and the packet of questionnaires in the self-addressed and stamped envelope that came with the study materials. Please keep the second copy of the consent form for your records.
Your participation in this research is voluntary and you must be between 20 – 70 years old to participate. You may refuse to participate, discontinue participation, or skip any questions you do not want to answer at anytime without penalty. If you have any questions or concerns about being in this study you should contact Dr. Snook by phone (413-545-6438) or email ([email protected]).
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