MS Patients in Belgium, need Support

Stuart SchlossmanAdditional MS resource sites, An MS Patients Story, Multiple Sclerosis

MS-STEUNACTIE loopt van 14 januari tot 25 mei 2011 / MS SUPPORT ACTION runs from 14.JAN. TILL 25.MAY
PLEASE NOTICE: For organizational reasons we ask those who are really coming  to Brussels to fill out the form . Thanks for this.
GOAL OF THIS ACTION:     MS SUPPORT ACTION : RUNS FROM 14 JANUARY  UNTILL 25 MAY   (MS WORLDDAY)
What has been achieved up to now:
Contacts:
  1.  Three  of the politicians we have contacted ( Elio Di Rupo and Petru Luhan), have already agreed to meet us on 25 May (see Schedule for 25 May).
  2.  Efforts have been made to convince, Yves Leterme, Laurette Onckelinckx to hear our grievances. Their answer is still pending. I expect a positive answer  by the end of the week .
  3.  Other politicians have also been invited to help us in our fight against MS. It must be feasible to have them cooperate.

 Schedule for
5 May
12.30 :a.p. meeting Alexander De Croo
17 May
10 : a.p. meeting Etienne Schou
 25 May (so far):
11:a.p. meeting Jo Vandeurzen (Flemish Parliament)
13.30:a.p. meeting Fadila Laanan
14:a.p. meeting Delizée
14:30 p.m. meeting with Elio Di Rupo
16:30 p.m. meeting with Petru Luhan (European Parliament)
 Goal of this action :
You may know someone with MS. Or maybe you see yourself day in day out confronted with MS. In either case SUPPORT this action.
MS is a disease that although not always visible gradually makes it impossible for the patient to function normally – physically as well as mentally. MS starts in the brain. It  then progressively attacks the nervous system. As it  spreads throughout the body, the patient’s gait, balance, and vision  deteriorate irreversibly. In the end the patient finds himself increasingly disabled and largely dependant on another person’s help.
Belgium lags behind in its fight against MS and the impact it has – socially and financially – on the patient’s life. There is no national register. Financial support remains insufficient. Not enough coverage from the media.
In order to focus public attention on this devastating disease I started this action (together with my daughter Isabella – see her picture on this page).
MS_onder_controle_03 
How to support this action:
Either visit the page on Facebook and express your support
Or Leave some comment in the guestbook on this site.
The pressure must increase!
All reactions will be collected in a file. This file will be handed over to our national and European policy making authorities in Brussels on 25th of May, world MS day 2011.

The more numerous we are, the more successful our trip to Brussels will be. A special appeal to those who cannot come to Brussels: if you cannot be there please leave some words of sympathy in support of our action on the Facebook Page.
 This action runs from 14 January until  25 May 2011. From  the 15th of  May onwards all modalities will be worked out and communicated.

  1. You can support this action by sending a mail or opening the link to Facebook.
  2. Do not hesitate to convince friends and relatives that their support counts. In particular, do not forget the ‘high-rankers’ who are in a position to really force a change. Send them the link to this website.

You can support by a  mail or to open the link on Facebook.
Isa tells about MS – movie (Dutch spoken)




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