MS Caregivers Share Needs in Study

Stuart SchlossmanCaregiver related, Multiple Sclerosis

Source: MS Foundation’s MSFYi e-Newsletter

A recent study from Mississippi State University (MSU) points to ways that improved health insurance measures can assist caregivers of people with MS. In a national survey of 530 informal caregivers of people with MS who have greater levels of physical dependency, about 70 percent of informal caregivers responded that assisting the person with MS perform daily activities or personal care took up the largest amount of their caregiving time. The scientists reported their findings in the journal Disability and Rehabilitation.

“Caregivers also reported a range of home and community-based services that would make caregiving easier or improve the care provided. However, informal caregivers generally reported low satisfaction with health insurance coverage of these services, especially coverage by health maintenance organizations and other managed care plans,” wrote R. Buchanan and colleagues at MSU.

The researchers concluded: “Lack of health insurance coverage of needed home and community-based services can reduce the quality of informal care provided, as well as increase the burden of informal caregiving.”


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