More Than Just Spasms and Pain: What It’s Like to Live with MS

Stuart SchlossmanAn MS Patients Story

Written by Caroline Craven on September 22, 2018


Feeling disconnected from their bodies, people with multiple sclerosis find ways to adapt.

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Creating a sense of well-being can help mitigate the negative effects of multiple sclerosis.
That’s what researchers in the Netherlands are saying in their recent study on the debilitating disease.
With multiple sclerosis (MS), the body can start to fail and falter due to various symptoms.
Feelings of “I can” are replaced with “I might be able to.”
“I still remember the first time I experienced muscle spasms in my arm and leg. I could no longer walk or sit normally. It scared me and made me wonder whether it was really my body as I felt totally disconnected from [it],” one person with MS recalled.
As the body is able to do less, experts advise healthcare professionals and people living with MS to focus on the what the body can do.
“I would like to know whether this paper resonates with the MS community,” Hanneke van der Meide-Vijvers, one study author and a postdoctoral researcher at Tranzo Tilburg University, told Healthline. “When it comes to healthcare practice, I strongly advocate a phenomenological perspective in which we start from lived experience rather than a body-mind dualism.”

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