2024
Medically reviewed by Luc Jasmin, M.D., Ph.D., FRCS (C), FACS //
Written by Kelly Crumrin
If you have relapsing multiple sclerosis (MS), it’s important to find the best neurologist for your needs. Due to the changing landscape of treatment options, you need someone with up-to-date knowledge to help you make decisions. Whether your current treatment plan is effectively treating your MS or you’re thinking about switching disease-modifying treatments (DMTs), a good neurologist will be your partner in making informed choices.
Once you find your neurologist, you need to know what to ask. It can be just as important to know what to share with them. It’s vital to let them know about new symptoms, your personal treatment preferences, and any challenges you have with taking medication as prescribed.
This guide is designed to help you find a neurologist who has expertise in treating MS and facilitate a good conversation about your treatment goals.
Finding a Neurologist To Treat Multiple Sclerosis
When you’re dealing with relapsing MS, it’s important to find a neurologist who specializes in treating the condition. Neurologists who don’t have expertise in MS may give you incorrect information.
Some neurologists recognize that they aren’t experts in MS and will refer you to someone who is. As one MyMSTeam member said, “Not all neurologists are good MS neurologists. My neurologist sends patients to MS centers and noted MS neurologists.”
When looking for a neurologist, there are a few questions you can ask to get a feel for whether they might be a good match for you. Here are some you might consider:
- How long have you been treating MS?
- Do you have specialized training in or knowledge of MS?
- Do you participate in research related to MS?
- How much of your time is spent seeing patients diagnosed with MS, as compared to those with other conditions?
You should also consider practical factors, like:
- Whether the neurologist takes your insurance
- Where the office or clinic is located
- Whether the neurologist speaks your preferred language
Finally, you should feel comfortable with a neurologist since you need to work with them long term. Make sure they’re willing to explain complex medical topics without condescension and they include you in any decisions about your treatment and care. If you want to bring a friend or family member with you to appointments, the doctor should be comfortable with that person’s presence, too.
It can take a long time to find a good neurologist who specializes in MS. MyMSTeam members know this well. One member shared, “It took me eight years to find a doctor that listened and ordered the right tests!” However, finding the right neurologist is worth the time and effort. Think of it as an investment in your future health.
While you’re looking, you can read about some of your possible treatment options. That way, you’ll be ready to have the conversations you need to have as soon as you get to your first appointment.
What To Tell Your Physician: Your Preferences and Priorities
Help your health care provider understand whether your condition is changing and what types of medication you prefer. When you meet with your doctor, tell them if you are experiencing new symptoms or worsening symptoms.
Consider the following aspects of MS treatment and make a note of what feels important to you, so you can let your health care professional know.
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