Failure is an Option – an MS Patient, Blogger’s story

Stuart SchlossmanAn MS Patients Story


                                                                  

  


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Dave’s ActiveMSers Blog


Posted: 30 Aug 2016 03:15 PM PDT
I stared at the kayak.
“Oh, hell no,” my brain was telling me. I wasn’t worried about the paddling
part—my arms can crank. But the getting in part, the staying upright part,
the getting out part, and the whole not drowning part were an issue. Laura
wanted to go, and suggested a tandem kayak would alleviate many of my
concerns. My brain was skeptical. My brain, wisely, wanted to bail. And then,
on the edge of a tiny lake in Colorado Springs six hours from home, my
celebrity doomed me.
“Hey, don’t you do a
blog?!”
Egad. Mr. ActiveMSer
has been spotted contemplating waffling on well, being active.
“I love ActiveMSers,
it’s so inspiring to see you getting out and doing what you can. It helped
motivate me to climb a fourteener. You are awesome! I’m Meg, a longtime
member with multiple sclerosis. It’s so great to meet you in person.”
Gulp. Totally busted.
There was no way I could let Meg down now.
Okay, I reasoned with
my brain, if Meg can do a fourteener (she even got a tattoo to commemorate
the experience), I can attempt to kayak for a measly 15 minutes. So I went
through my basic pre-kayak checklist: life jacket—check, paddle—check,
behaving bladder—check (as much as one can check such things).
As I expected, getting
into the kayak was challenging. But with a little help, I was off and
paddling! That is, until I wasn’t. While my arms are great, my core (despite
lots of training) puts the eh in meh. With my legs in front of me and no back
support in this particular kayak, after a half dozen strokes I was admiring
the puffy clouds directly above me in the sky. I discovered kayaking while
lying on one’s back is rather impossible.
For the rest of our
excursion, which was nearly a half hour, Laura did 98 percent of the work
while I grabbed my legs to stay upright. If we got near shore, I’d paddle for
a few strokes in the event a swarm of paparazzi (or just Meg) was going to
capture my lameness for the tabloids. Oh, I didn’t actually care. Why?
See, earlier that day
I played wheelchair tennis, a sport I feared would depress me, and just
remind me of how I used to love to play the game and how I now had no
business setting foot (or wheels as the case may be) on the court. Sure, I
was terrible, but it was fantastic fun. Laura had to drag me off the court
after nearly two hours. We even played doubles!
The point is, there
likely will be times with multiple sclerosis that you fail trying to do
something that the old you could do effortlessly. It’s important to realize
that that’s okay. Heck, when you have MS, failure absolutely is an option,
and an important one. Because if you never try, if you never experiment, if
you never leave your comfort zone, then this disease wins. Screw* that.
While I enjoyed
getting out on the lake on a beautiful day, I’ll try to kayak again with
proper back support (and ideally an adaptive instructor). And I’ll get back
out on the tennis court with a proper wheelchair designed for swinging the
racquet and chasing balls. As for when motivation wanes and doubt creeps in,
I discovered that you need to find inspiration wherever and however you can.
This day it was a touch of serendipity, and her name was Meg.
*Note: my editor, aka wife, used this word to replace the more
descriptive and vulgar word that I had originally chosen. Children, she
reasoned, might read this. Meanwhile, I’m thinking kids have better things to
do than to read blogs that contain words that rhyme with duck. While I always
defer to her (always) better judgement, feel free to replace said word in
your head for dramatic effect.

More found here: Dave’s ActiveMSers Blog.











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