*** This COViMS (COVID-19 Infections in MS & Related Diseases) is a joint effort of the National MS Society, the Consortium of MS Centers and the Multiple Sclerosis Society of Canada to capture information on outcomes of people with MS and other CNS demyelinating diseases (Neuromyelitis Optica Spectrum Disease, or MOG antibody disease) who have developed COVID-19.
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https://www.covims.org/ (HOME PAGE)
We ask you to register any appropriate patient, regardless of severity (including asymptomatic patients detected through screening). Please report only after a minimum of 7 days and sufficient time has passed to observe the disease course through resolution of acute illness or death. Reporting a case to this database should take approximately 10 minutes.We hope to capture outcomes of COVID-19 in people with CNS demyelinating diseases (MS, Neuromyelitis Optica Spectrum Disorder, or MOG antibody disease).Definitions:• Laboratory Confirmed COVID-19 – Positive viral RNA tests or positive serology for SARS-CoV-2• Suspected COVID-19 but not confirmed – Fever with Dry cough, +/- anorexia, myalgias, dyspnea, anosmia/ageusia and potential exposure.This registry has been determined “not human subjects research” under US Federal Guidelines by the IRB atWashington University in St. Louis. The database contains only de-identified data, in accordance with HIPAA Safe Harbor De-Identification standards. Please note: You can save your answers and return, but once “SUBMIT” is clicked, you cannot return to update or change any information submitted. The COViMS clinical database uses Branching Logic. Click “reset” if you make a mistake.After you submit your report, you will not be able to edit the entry any longer. A copy of your entry will be available for download after you submit the entry.Fields marked with a red asterisk (*) are required.If you have any questions, please reach out to info@COviMS.orgThank you!
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