COVID-19 Studies Recruiting People with MS

The National MS Society is partnering with organizations and supporting research that seeks to understand the impacts of COVID-19 for people living with MS, both in those who have the infection and those who do not. Other studies may address the impact of COVID-19 vaccines in people with MS.Learn more about COVID-19 and MS

Sponsore: University of MichiganTime to Complete: 30-40 minutesAll individuals with Multiple Sclerosis are invited to participate in a survey to help learn more about fatigue in MS and the impact of the COVID-19 pandemic on fatigue. Questions will include demographics, fatigue severity and how fatigue impacts your daily activities, questions about other MS symptoms, and questions about how the COVID-19 pandemic impacted fatigue.Learn more

Sponsor: Penn State BerksTime to complete: 1.5 hoursResearchers are conducting an IRB-approved study to investigate and understand the challenges and coping strategies utilized by adults with disabilities during the COVID-19 pandemic. Each focus group will consist of about five people along with the two investigators, and the discussion will take place over Zoom. The investigators will ask broad questions about your experiences during the COVID crisis and allow you to answer however you please in a conversational format. Participants will be compensated. You are eligible for the study if you are 18, reside in the USA, and can independently give consent for participation. Learn more 

Sponsor: University of Illinois at Urbana-ChampaignTime to Complete: Approximately 10-20 minutes interview

Researchers are developing an artificial intelligence agent to understand and address the concerns about the COVID-19 vaccine among people with MS. Participants will be talking with the AI consultant for 10 – 20 minutes in an online meeting. Participants will be compensated for the participation time. Please fill out a brief screening form at the link below. A researcher will contact you to set up the meeting. Please contact [email protected] for more information about the study.  

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Sponsor: iConquerMSTime to Complete: 15-20 minutesCOVER-MS is a study that assesses the experiences of those diagnosed with MS who received the COVID-19 vaccines. If you have received the COVID-19 vaccine and are diagnosed with MS, visit the iConquerMS website to share your experience.

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Sponsor: iConquerMS™Time to Complete: 15-20 minutesiConquerMS is conducting this survey to learn more about how people affected by MS are dealing with the COVID-19 pandemic and what has been their personal experience with COVID-19.Learn More

Sponsor: iConquerMS™Time to Complete: 1-2 minutesiConquerMS is currently looking for research questions on the topic of COVID-19 and MS. What do you wish was better understood on this topic? Do you belong to a racial or ethnic minority group? They would especially like to hear from you. Communities of color have been affected more strongly by COVID-19 and often by MS as well.Learn More

Sponsor: University of PittsburghTime to Complete: A series of brief online questionnaires over the course of one year.A consortium of researchers are conducting a prospective survey study to examine the risk of COVID-19 and the broader impact of the pandemic in people with MS and related disorders as well as community controls. The questionnaires ask about risk factors, precaution measures, change in neurological care, COVID-19 status, neurological and psychosocial outcomes as well as social connectivity. The goal is to use the survey response from the patients and controls to better guide the patient community. For questions about the study, please contact the Principal Investigator Dr. Zongqi Xia and the research team at [email protected] or 412-360-8203.Learn More

Sponsor: University of PittsburghTime to Complete: A series of brief online questionnaires over the course of one year.A consortium of researchers are conducting a prospective online survey study to help understand the current feelings about receiving (or not receiving) the COVID-19 vaccine and to evaluate the tolerability and safety for those who receive vaccination. Any adult age 18 or above with or without a diagnosis of multiple sclerosis could participate.  There is no geographic restriction. The goal is to gather real-world evidence of COVID-19 vaccination to better guide the patient community. For questions about the study, please contact the Principal Investigator Dr. Zongqi Xia and the research team at [email protected] or 412-360-8203.Learn More