A word from an awakened spirit. For the Tysabri users out there.. Tysabri only seems to make some of us, feel super-human for much of the time, but not all of the time.
After yesterday, I strongly suggest that no “T” user plans an event (large or small) (social or otherwise), on a weekend just before the next infusion…
I am utterly drained, after the ms education program that I choreographed for yesterday’s program in Ft. Lauderdale on “Treatment Brings Hope” (see below)
Gee-whiz (colloquial)- makes me remember the times before “T”…
Life was different then…. and today (but hopefully not tomorrow), will make me remember one of the reasons I chose “T” …
Now if I can only get my day started, I am only (already) two hours behind…
re: Treatment Brings Hope:
As I have stated many times – If diagnosed with any disease that has medications to thwart or slow further progression, you had best be using it. Fore, without using a medication that has been proven to slow progression only increases the percentage of you worsening when you “had” an option. And if there is more than one medication for that illness and one doesn’t seem to work as well as you want, then try another option.
Using an available treatment will allow you “to do”. To do things you may not may able to do if the illness/disease worsens.
Life is too short to await a cure and so I will say Treatment Brings Hope…
Have a good day.. I will be resting today…
written by: Stuart Schlossman – Sunday, April 4, 2010
( and I just had to look at a calendar as I had no clue what day of the week today was – Cognitively speaking)
Meltdown, meltdown………. m-e-l-t-d-o-w-n
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