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From Julie Stachowiak, Ph.D., your Guide to Multiple Sclerosis
With all of the emotions swirling around CCSVI and MS, I was pretty curious to hear what the scientists who developed this theory had to say in the web forum last week (co-sponsored by the National MS Society and American Academy of Neurology). I got the impression that they are a little nervous about the response among MS patients out here in the world. While many people are simply asking to be tested, many others are going ahead and seeking treatment.
I was happy to hear that the conflict between the urgency felt by people with MS and the scientific desire for methodical thoroughness was acknowledged. One of my favorite ideas to date is the establishment of a registry of patients undergoing CCSVI treatment and testing, as this would provide at least some information as to what is going on across the globe, as well as some data in terms of patient outcomes. Seems like a good compromise to me. We’ll keep watching this one. Take care of yourselves, my friends. |
Scientists Call for Ethical Consciousness Around CCSVI Treatment and Research
In a live web forum entitled, “What Do We Know About CCSVI?” sponsored by the National Multiple Sclerosis Society (NMSS) and the American Academy of Neurology on April 14th, people with MS were able to join researchers and journalists in hearing about chronic cerebrospinal insufficiency (CCSVI) and multiple sclerosis straight from the people who developed the theory and conducted initial research around the MS-CCSVI link. Read more…
Copaxone Still an Option for Many
This is “news” from the meeting of the American Academy of Neurology last week. Basically, research shows that people who switch from interferons to Copaxone (either because of side effects or ineffectiveness) seem to do pretty well on Copaxone. I thought we already knew this was an option, but interesting to see it presented formally here. Read more…
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