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MS Cure Fund News:
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Rarely does multiple sclerosis get the attention it deserves. But this time we won, and big! MS Cure Fund was able to successfully lobby Neurology Now to include pediatric MS in its discussion of rare adult diseases diagnosed in children.
Thanks
to the tireless efforts of the International Pediatric MS Study Group (IPMSSG) including U.S. based Dr Tanuja Chitnis (Steering Committee Chair), Dr. Lauren B. Krupp, Dr. Emmanuelle Waubant, Dr. Brenda Banwell and a host of other amazing researchers and clinicians around the world, pediatric MS is getting the attention it so desperately deserves. |
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“Sick Before Their Time” by Natalie Pompilio
is a wonderfully compassionate story sharing the extraordinary difficulties
faced by pediatric patients, their families and the MS specialists who treat
them.
is a wonderfully compassionate story sharing the extraordinary difficulties
faced by pediatric patients, their families and the MS specialists who treat
them.
MS
Cure Fund is proud to be the global partner of the IPMSSG. Our role is to
raise funds to:
Cure Fund is proud to be the global partner of the IPMSSG. Our role is to
raise funds to:
- Support dissemination of education for
pediatricians, emergency room personnel and primary care providers to
improve accurate diagnosis of pediatric MS - Provide helpful explanatory information for
pediatric patients and families that explains not only MS, but how to live
a life well, not sick. - Fund research of the intricate nuances that make
pediatric MS so difficult to diagnose and perhaps find environmental
triggers that cause MS in the first place.
www.mscurefund.org
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